Latest Post
1115 Waiver Discussion Board
By Maggie Hoffman and Susan Platkin
Hi!
We are members of OPWDD’s Statewide 1115 Waiver Discussion Board, a group comprised of family members and self-advocates from all around New York. The Board is scheduled to meet monthly for a year. Each Board is facilitated by a DDSO staff member. On Long Island, our liaison is Lois Kilkenney (copy link and paste into your browser for names and email addresses of the liaison in your area, http://www.opwdd.ny.gov/2011_waiver/waiver_vc_discussion.jsp). Waiver Discussion Board members have been encouraged to share any information we get, and this is our attempt to do so. If you have questions, feel free to email us at nyselfd@gmail.com, or contact your liaison.
On January 10, groups at all the DDSOs were joined through videoconference, led by Commissioner Burke, who gave an overview of the 1115 waiver process and then answered our questions.
Link to her PowerPoint presentation
Below, we’re going to present a bit of background information and summarize the questions and answers as we heard them. We apologize in advance for any omissions or errors. Our commentary/additions are in unbolded italics and are attributable only to us.
Featured Posts
As many of you know, the NYS Office for People with Developmental Disabilities (OPWDD) has been in the news lately, and not in a good way. The Poughkeepsie Journal reported that Federal Medicaid has been funding residents of nine New York State developmental centers at $1,000,000 a year (yes, that’s a daily rate of over $5,000 per person per day), and an audit is ongoing. In addition, the New York Times series on abuse and neglect in residential facilities managed by OPWDD has caused outrage and fear, especially for families, and investigations have been reopened. Continue reading
Hi, and welcome to the New York Self-Determination Coalition (NYSDC) Blog!
We are a group of parents, and a few professionals, who care about and support self- determined people with developmental disabilities. We are not funded or paid, and we are not sponsored by any governmental or voluntary agency.
Our only agenda? To promote self-determined lives for people with developmental disabilities. Continue reading
nyselfdetermination
Maggie Hoffman
Susan Platkin
Wendy Kaplan
